Campbell, our founder of SkiFast, passed away on February 22, 2021 after a nearly four year battle with CIC-DUX4 sarcoma. We are beyond devastated with the loss of Campbell, and as a foundation we promise to never stop Campbell’s fight to support and advocate for pediatric sarcoma warriors. Campbell’s mission was to not only support her fellow peers fighting this horrible disease, but to assist in finding a cure.
Campbell's mother Gibby recently wrote: "she brought so much passion and love to every day, whether it was sending cheer through a card, or in person, reaching out online, determined to advocate for other kids even when she felt the worst herself. There are days when she would open her eyes just to give an interview and be clear and passionate as ever just to fall asleep exhausted as soon as she was off the video call. One thing she would want me to tell you is that cancer is NOT a win or lose battle and that is because no child chooses this fight. It's not a competition and so you can't lose to cancer. Campbell rose to this challenge and figured out a way to grow and spread joy and passion like ripples across the water. Sitting in the hospital looking out the window I thought that's what we will do, try to be a window for the light of Campbell to shine through."
Campbell's words: "At the start of my junior year in high school, I faced an obstacle that changed my life forever. I was diagnosed with Stage IV CIC-DUX4, "Ewing's Like" Sarcoma. I had a 12cm tumor in my calf and nodules in my lungs. My world came down on me. I considered dropping out of school, all the plans I had to compete as an Alpine athlete were put on hold."
"My cancer is extremely rare and aggressive. Initially, I had 14 rounds of chemo, 31 doses of radiation to my calf, 10 doses to my lungs and a rod placed the length of my left tibia due to radiation damage. I relapsed 7 months after completing 7 months of treatment and had major surgery to remove the soleus muscle in my calf, a lung resection, 6 more rounds of chemo, fertility preservation and egg retrieval followed by a stem cell transplant on March 11th, 2019. The month I went through transplant was the absolute worst of my life. I was allowed back home three weeks before high school graduation and graduated on May 31st, 2019, with treatment finished and my recovery process beginning once again."
"During my fight with cancer, I learned a lesson that I can use through any challenge. I learned to embrace a different role, something I never saw coming - being a leader from the sidelines. Being diagnosed with cancer put life in a whole different perspective. I had to make myself happy without doing the thing I loved most: ski racing. Luckily, I found something that kept me involved with my friends and committed to my team, coaching. I showed up as often as I could, no matter the circumstances - even if it was the day after a chemo treatment. Most days I dragged myself up the hill and just sat there so I could be with my team. It takes a different type of courage and commitment to still go out and support your friends while not being able to participate yourself. So many days you are forced to stay in bed at home or in the hospital, but I knew my place was on the hill with everyone who cared for me."
"My comeback has been bumpy, to say the least. I knew it was going to be hard. I relapsed again in November of 2019 but I am determined to achieve my goal of attending college in the fall of 2020. As for the community at large, I want to continue contributing to the childhood cancer community online, through youth advocacy groups and at Children's Hospital Colorado. I intend to use my college education in the medical field, either through research or interacting with patients directly in nursing or as a doctor. Facing cancer has been a challenge I wouldn't wish on anyone but I would tell others that conquering cancer both mentally and physically has taught me leadership and perspective, skills I am taking to college with me that are not on my transcript. Instead of limiting me, cancer has motivated me to take on the future, no holding back."
Campbell Barrett Sullivan
05/13/2001 - 02/22/2021
Finn is 16 years old and in 10th grade. He is an avid Nordic skier and baseball player. You'll find him gaming, playing outside, or taking care of his chickens!
Addie is 18 years old and a freshman at the Colorado School of Mines. She is a ski racer and soccer player, along with being a huge Harry Potter fan!
Caitlin is 27 years old and graduated from the Air Force Academy! She lives in Spokane, Washington with her wife Cicily, and two dogs. You'll find her mountain biking or skinning up the tallest mountain in sight!